Tuesday, March 23, 2010

A Ben update

I left off before Ben had the VCUG, which is basically an X-ray of his bladder, etc.
They filled his bladder with dye then took pictures to see if the dye was backing up into the kidneys, which would be a reflux condition.
Turns out it was not doing that.
The urologist we had been seeing now thinks it is a UPJ obstruction.
But since he doesn't know and, by his own admission, he does not treat many patients as young as Ben, we are moving on.
We have an appointment next week at Childrens Hospital Los Angeles.
I am hoping for a more understanding doctor there.
I also am hoping that they can be more specific in what the problem is and how we treat it.
Since they deal only with kids and parents, maybe they have better bedside manner than the urologist we have been seeing.
Anyway, I have the tests and reports that we have so far (two ultrasounds, the VCUG and the renal scan) for Ben.
Other than the apparent kidney problem, Ben is doing great.
He is smiling and chatting all the time. He sleeps 8, 9 or 10 hours a night and wakes up smiley and happy.
Going back to work was very hard on me, but three weeks back into it and things are improving.
It just makes me appreciate the time with Ben even more.


Sona said...

Oh gods! I do hope you find someone who can get your little boy the help he needs soon!

Jill said...

We are on the right track, I think.
CHLA should be a much better fit for us than a guy who sees more erectile dysfunction patients than anything else.
Thanks for your kind words.